What ELSI is New?
On Monday the Genomics Law Report will debut a series of guest commentaries by industry, academic and thought leaders in the fields of genomics and personalized medicine. The series is modeled on the Nature Genetics 2007 Question of the Year (“What would you do if it became possible to sequence the equivalent of a full human genome for only $1,000?”) with a slight modification.
Entitled What ELSI is New?, the series will feature commentators responding to the following question: “What do you believe is the most important ethical, legal or social issue (ELSI) that must be addressed by the fields of genomics and/or personalized medicine?” The purpose of the series is to identify a wide range of ethical, legal and social issues that must be addressed to fully realize the promise of genomics and personalized medicine.
As the series gets under way we encourage you to share your own thoughts about the future of genomics and personalized medicine, in the comments to both this post and the individual guest commentaries.
Finally, don’t forget that if there’s a topic that you’d like to see covered by the Genomics Law Report, you can always let us know right here. Thanks for reading!
The GLR looks forward to presenting contributions from the following leaders in the What ELSI is New? series:
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23andMe
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Archon X Prize for Genomics
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Blaine Bettinger, Bond, Schoeneck & King / the Genetic Genealogist
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Ruth Chadwick, Cardiff Law School
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Eric Juengst, Case Western Reserve University Center for Genetic Research Ethics and Law
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Michelle McGowan, Case Western Reserve University Center for Genetic Research Ethics and Law
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Complete Genomics
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Jen S. McCabe, Contagion Health
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Allie Janson, DNAExchange
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Misha Angrist, Duke University Institute for Genome Sciences & Policy
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Susanne Haga, Duke University Institute for Genome Sciences & Policy
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Robert Cook-Deegan, Duke University Institute for Genome Sciences & Policy
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Esther Dyson, EDVenture Holdings
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David Ewing Duncan, Experimental Man
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Matthew Herper, Forbes
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Sharon Terry, Genetic Alliance
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Gail Javitt & Stephanie Devaney, Genetics & Public Policy Center
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David Dooling, The Genome Center at Washington University
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George Church, Harvard Medical School
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Patrice Milos, Helicos BioSciences
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Steven Murphy, Helix Health
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Chris Gunter, HudsonAlpha Institute for Biotechnology
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Mostafa Ronaghi, Illumina
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Barbara Prainsack, King’s College London
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Jennifer Sweeney, Knome
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Derya Unutmaz, Oral Alpan & Ekaterina Vasileva, Longenics
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Catherine McCarty, Marshfield Clinic Research Foundation
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Felix Frueh, Medco Health Solutions
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National Society of Genetic Counselors
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Jonathan Lord, Navigenics
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Zoe McDougall & Gavin Harper, Oxford Nanopore
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Pathway Genomics
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Ting Wu & Dana Waring Bateman, Personal Genetics Education Project, Harvard Medical School
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Jason Bobe, The Personal Genome Project
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Caroline Wright & Alison Hall, PHG Foundation
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Thinh Nguyen, Science Commons
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Mike Cariaso, SNPedia
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Hank Greely, Stanford Law School
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David Gurwitz, Tel-Aviv University
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Harry Zanville, Thomas Jefferson School of Law
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Mark Henderson, The Times of London
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Katherine Payne, The University of Manchester
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Bertalan Mesko, Webicina.com
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Daniel MacArthur, Wellcome Trust Sanger Institute
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