What ELSI is New? — Table of Contents
Andro HSU, 23andMe – How will medicine and its regulation adapt to the information age?- Blaine Bettinger, Bond, Schoeneck & King / the Genetic Genealogist - Education, Not Regulation, Will Benefit Consumers of Recreational Genetics
- Michelle McGowan, Case Western Reserve University Center for Genetic Research Ethics and Law – Personalized Genomic Medicine and Health Care Justice
- Alan E. Dow, Complete Genomics – Genetic Exceptionalism and the Precautionary Principle
- Thinh Nguyen, Creative Commons Counsel for Science Commons - The Hidden Legal Barriers to Scientific Research
- Misha Angrist, Duke University Institute for Genome Sciences & Policy - Dear Dr. Board-Certified Clinical Geneticist
- Robert Cook-Deegan, Duke University Institute for Genome Sciences & Policy – The balance of experiment and theory is shifting in genomics; this matters for ELSI
- Esther Dyson, EDVenture Holdings - How will we handle the capability and responsibility of creating human life to spec?
- Matthew Herper, Forbes - The Direct to Consumer Disconnect: Why the genomics community is going to have trouble talking to patients and doctors alike
- Sharon Terry, Genetic Alliance - Informed Health Decision-Making through a Registry for Genetic Tests
- Stephanie Devaney, Genetics and Public Policy Center at Johns Hopkins University, and Gail Javitt, Berman Institute of Bioethics at Johns Hopkins University and Sidley Austin LLP - FDA should develop consistent evidentiary standards for post-market labeling changes to include pharmacogenetic information
- David Dooling, The Genome Center at Washington University - Personalized medicine, leave U.S. behind
- George Church, Harvard Medical School – In Support of Open Access for Genomic Research
- Patrice Milos, Helicos BioSciences – “So… One Can Have Their Complete Genome Sequenced…Should I?”
- Steven Murphy, Helix Health of CT - Why Are We Missing What Is Important In Personalized Medicine?
- Chris Gunter, HudsonAlpha Institute for Biotechnology - We must revolutionize our communication of science to non-scientists
- Barbara Prainsack, King’s College London – The participatory turn in medicine – Which letter in the alphabet?
- Jennifer Sweeney, Knome – Privacy & Ownership of an Individual’s Personal Genetic Information
- Catherine McCarty, Marshfield Clinic Research Foundation – To Share or Not to Share: That is the Question.
- Board of Directors, National Society of Genetic Counselors – Potential increased health disparities related to genomic medicine
- Jonathan Lord, Navigenics – We need to work together to expand access to genetic testing
- Zoe McDougall & Gavin Harper, Oxford Nanopore - The Risk of Communicating Risk
- Ting Wu & Dana Waring Bateman, Personal Genetics Education Project, Harvard Medical School – The next generation is ……. in high school.
- Jason Bobe, The Personal Genome Project – To the moon: In support of the genomic astronauts who will take us there.
- Caroline Wright & Alison Hall, PHG Foundation – Genetic discrimination: problem or paradox?
- Austin Alexander, Siftgen, Inc. – Pre-implantation Genetic Screening: Socioeconomic Stratification and Equality of Opportunity
- Mike Cariaso, SNPedia - Self Explorimentation
- Hank Greely, Stanford Law School - How will we handle the rapidly approaching flood of genomic information on individual patients and consumers? and How should we deal with the arrival of very common prenatal testing for a broad set of genetic characteristics?
- David Gurwitz, Tel-Aviv University - Personal genomics and genetic information nondiscrimination legislation: Are we ready?
- Mark Henderson, The Times of London – Finding The Proper Place for Genetics in Insurance
- Jenny Reardon, Department of Sociology and Center of Biomolecular Science and Engineering at UC Santa Cruz, and Stephanie M. Fullerton, Department of Bioethics and Humanities at the University of Washington - Does a genomics that does not work for some mean a genomics that will not work for all?
- Katherine Payne, The University of Manchester - Personalized Medicine: what is the added value to healthcare systems?
- Allie Janson, University Health Network/Mount Sinai Hospital’s Fred A. Litwin Family Centre in Genetic Medicine and DNA Exchange - Medical vs. “Recreational” Genomics: Drawing a Line in the Sand
- Bertalan Mesko, Webicina.com – Personalized Medicine in the Web 2.0 Era
- Daniel MacArthur, Wellcome Trust Sanger Institute – It’s my genome: should researchers be obliged to return genetic data to research participants?
Filed under: Featured Content, What ELSI is New?
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