Twitter Roundup

Posted by Dan Vorhaus on July 30, 2010

It has been a busy few weeks for the Genomics Law Report. We provided extensive live-Twitter coverage of several recent events, including the FDA’s public LDT meetings (Day 1, Day 2) and last week’s Congressional hearing on DTC genetic testing. However, with so much going on at the intersection of genomics and the law, not every interesting story found its way into a full-length posting on the Genomics Law Report. Here is a recap of what else I was Tweeting recently @genomicslawyer:

Excellent per usual: @dgmacarthur on the costs of protecting consumers from their own genetic info: http://bit.ly/99DD7D
GLR Post: European Court Issues Gene Patent Ruling Against Monsanto—A Myriad Connection? http://bit.ly/9EbufG
What the new model of citizen science looks like: http://bit.ly/bOZBK4 by @LaBlogga H/T @bachinsky
RT @EdwardWinstead: Terrific article in Reason about where we are with personalized genetic tests (“the Apple II era”) http://j.mp/cRY8FB
RT @dgmacarthur: Great post by @eurogene on the deceptive practices behind the GAO report into DTC genomics: http://bit.ly/927Qww
Agree or disagree, credit to @PHGFoundation for offering a concrete proposal for DTC genetic testing regulation: http://bit.ly/9leus5
It’s the translation, stupid! @Duncande’s piece on #HouseDTC at CNN/Fortune is typically well-balanced: http://bit.ly/aGY46X
George Church tweets now: RT @geochurch: Creative compu-bio-nano-tech u(dys)topias from John Sundman: http://bit.ly/9olUNC
RT @dgmacarthur: Caroline Wright from @PHGFoundation has a balanced @genomesunzipped post on the current DTC furore: http://bit.ly/aOzNOH
RT @iftfhealth: The Geneticist Will Skype U Now – feat. @MishaAngrist, @genomicslawyer, @dgmacarthur http://tinyurl.com/35t94hf thx brad!
RT @23andMe: Follow up to last week: we had a productive meeting with the FDA on Friday, and we look forward to continue working with them.
MT @MishaAngrist: Webinar on Havasupai case http://bit.ly/99eDHv Angst-ridden talk of NBS DNA & #HeLa. Lesson: informed consent = broken
Illumina Announces Creation of the Illumina Genome Network: http://bit.ly/an8HYg Hi-Seq as a cloud?
Newsweek science writer (Human Condition) @mary_carmichael is now on Twitter & an immediate must follow.
MT @eurogene, @sociallifeofdna using GAO report as DTC company marketing technique! http://bit.ly/ckQaGc #HouseDTC
RT @neandrothal: Note to Jeff Shuren: “Out-of-the-box” approaches very diff from “outside-the-box” approaches http://bit.ly/9Nyor0 #HouseDTC
MT @razibkhan: Personal genomics & the state: Dr. Daniel MacAthur & Dan Vorhaus offer their takes on #HouseDTC http://bit.ly/aYXhJx
Rebuttal to GAO’s report on DTC genetic testing from @23andMe: http://bit.ly/avzVZ8 #HouseDTC
Wish I could be there! RT @MishaAngrist: all kinds of mind-boggling peeps at Open Science summit next week http://bit.ly/b4NRq1 and me…
RT @MishaAngrist: “Can’t stop killing you.” My response to yesterday’s dog and pony show. http://bit.ly/bHFqrf #HouseDTC
#FF 2/2 @ldtimmerman @neandrothal @Duncande @wilbanks @emilysinger @tgoetz @nutrigenomics @lindaavey @dgmacarthur @GeneSherpas @bigs @chiah
Tx all for #FF. A few (of many) I try to never miss @EdwardWinstead @markgfh @eurogene @genomesunzipped @MishaAngrist @drjonboyg @shwu (1/2)
RT @dgmacarthur: Why I love blogging: the comments thread on my @genomesunzipped post on #HouseDTC is fantastic: http://bit.ly/ds5LGo
RT @dgmacarthur: AH: strong genetic privacy regulations may conflict with desire of DTC consumers to share results #ukcsj
Next House hearing of interest? “House committee to hold hearing on public access to publicly funded research”: http://bit.ly/axr0Ub
Interesting not even on market yet RT @GW_The_Sample: FDA Deals Blow to Sequenom, Says SEQureDx Appears to Be an IVD: http://bit.ly/a6uWxb
RT @23andMe: Video recordings from last week’s Policy Forum are now available on our site: http://bit.ly/9C5or4
RT @lindaavey @raymondmccauley DNA Rights Petition “Consumers have a right to access personal genetic info” http://bit.ly/cc7MWU #HouseDTC
MT @markgfh: Some preliminary thoughts on the Congressional hearings on personal genomics http://bit.ly/9O2qZE (sub) #HouseDTC
Like it or not, the GAO YouTube video will be lasting data pt from #HouseDTC hearing. Who knew gov’t was so media savvy?
The media fallout begins: RT @DukeIGSP: Federal ‘sting’ slams gene test. @nytimes http://nyti.ms/9UwEU0
While You Were Meeting: FDA Mails Letters to 14 More Genetic Test Providers: http://bit.ly/984iUo
LA Times: report says 53% of parents are interested in genetic testing for their kids: http://bit.ly/9RY6oH
GLR Post: The Conversation Continues: Recap from Day Two of FDA’s LDT Regulatory Meeting: http://bit.ly/cSr3lE
Duke suspends researcher and halts cancer trials: http://mobile.nytimes.com/article?a=630029&f=23
RT @dgmacarthur: scare-mongering and exaggerated anecdotes about DTC testing in the Washington Post: http://bit.ly/dzAmAM
Now we move on to the panel discussion, moderated by Muin Khoury of CDC
After the public comments, the DTC scorecard at #FDALDT looks like this: 3 in favor of DTC, 5 opposed and 1 (Navi) that punted
Q: to what extent would oversight of LDTs be a problem for changing/modifying tests?
Duke is looking into whether and how genetic testing changes behavior: http://bit.ly/chLVIA Good ex of type of needed data collection
Q: do patients know/care about how LDTs are regulated?
First panel question: “How might increased FDA oversight of LDTs affect patients and clinicians?”
Eric Lawson, Voisin and AMDM working group: does not support use of LDTs for companion diagnostics (CDx)
Mansfield: example of Class II would be genetic tests where phenotype is already known; implication that diagnostic testing Class III?
Additional insight on the Washington Post / @23andMe story from @CeCeLMoore: http://bit.ly/cIUOxlhttp://bit.ly/cIUOxl
RT @kashhill: RT @yalelawtech A Brave New Genetic Database http://bit.ly/aeONoG (thanks @kashhill and @atlblog)
Does personal data privacy mean keeping it secret, or taking control? http://nyti.ms/9kyve6 HT: @dgmacarthur @nutrigenomics @AchimMuellers
In DC (Hyattsville, MD) for FDA public meetings on LDT regulation. Who else is in town? #FDALDT
RT @lukejostins: RT @dgmacarthur #FF Comrades from @genomesunzipped: @lukejostins @VincentPlagnol @PHGFoundation @jandot @jcbarret
My slides from #gcpm are avail here: http://bit.ly/avS8zl Bigger picture thoughts are here: http://bit.ly/bTS3l9
Personal Genomics Goes to Washington: http://bit.ly/bTS3l9
Just in: Waxman’s Energy and Commerce subcommittee to hold DTC genetic testing hearings nxt Thurs, right after FDA mtg.
Lee Hood arguing for a CSI-like tv show to help spread P4 to the masses. Personal genomics going Hollywood? #gcpm
Neither is blackberry. Having wi-fi issues. RT @lindaavey: IPad not good for tweeting! Follow @shwu #gcpm
Grim Sleeper Awakens Attention to Familial Searching of DNA Databases: http://bit.ly/bMIcXf
Just landed @ SFO. Enjoying bonus daylight & looking frwd to @23andMe policy forum tmrw. Hashtag #gcpm for live tweets.
Sounds like Grimes RT @matthewherper: “The presence of informed consent does not render ethical a study that is by nature not ethical.”
RT @dgmacarthur: Inaugural Genomes Unzipped post: @lukejostins on the importance of sequencing for personal genomics: http://bit.ly/af78OD
Welcome to Genomes Unzipped! http://bit.ly/9Jjexn @GenomesUnzipped
Bilski boost short-lived: RT @GenomeWeb_News: Myriad’s Shares Hit 52-Week Low: http://bit.ly/akbWOY
California Legislators’ Effort to Prevent Student DNA Testing Could Come Too Late: http://bit.ly/cGsOBa HT @GW_The_Sample
Request for comments on development of NIH’s Genetic Test Registry extended until Aug 2: http://bit.ly/a8pRQJ HT @dgmacarthur @shwu
RT @dgmacarthur: Personal genomics customers: Rob Stein needs to hear about your positive experiences: http://bit.ly/90omPS